I will come back later with more details, but just wanted to let you know that Molly’s umbilical vein actually looked a little better today, her ductus venosus was still abnormal (but stayed the same), the size of her heart went down from 37% of her abdomen last week to 29% (over 33% is considered […]
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Just wanted to update you that baby Roger’s family updated his CarePage to let their family and friends know that he did pass away this afternoon. I was so sad to read their news and pray that Roger rests in peace. My thoughts and prayers are with his family and their angel Roger. I really […]
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You can tell when I am anxious about something, as I spend a lot of time online and even blog as much as three times in one day! Two more things: 1) Sean and I went out to lunch today with one of Sean’s preschool classmates and her mom and younger brother. We had a […]
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“Patience with others is love. Patience with self is hope. Patience with God is faith.” ~ Adel Bestevaros To say that we have had to practice patience over the past 10 weeks, since Molly’s first very low heart rate was measured, is an understatement. However, it certainly is a word that encompasses each minute, hour […]
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I promise to come back and catch up more later, but wanted to post quickly this morning to ask for your thoughts and prayers for a “heart baby” named Roger who is two months old. I found out about him and his family on http://www.carepages.com/ (CarePage Name: RogerCarepage) and though his diagnosis is not exactly […]
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Here is the latest on Molly’s heart condition. Again, I am sharing an email I just sent to our family and close friends. Thank you so much for your comments, they mean so much to me. We did get to have a “3D” ultrasound this morning and I will try to get back soon and […]
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